Migraine Ninjas

Migraine Ninjas Spread Hope and Fight Suicide

Image1As 2017 ends and 2018 begins, it's human nature to think about the people we lost last year. Death is a part of the life cycle, something we must often accept. Death is not, however, acceptable when someone takes their life because they've lost hope. The American Foundation for Suicide Prevention says,

"Suicide most often occurs when stressors and health issues converge to create an experience of hopelessness and despair." 

In the Migraine and Headache community, we see health issues and other stressors weigh heavily on people all too often. Consider how frequently we come across these issues (and more) in both online and offline conversations:

  • finding a doctor who understands and knows how to treat Migraine
  • trying preventive treatment after preventive treatment looking for one that works
  • coping with employers, family members, and friends who don't understand what it takes to live with Migraine, and aren't supportive
  • managing the financial burden of Migraine treatment, especially when Migraine is keeping people from being able to work
  • living with frequent — or even daily — pain and other symptoms
  • facing the social stigma associated with Migraine disease

Is it any wonder that people can begin to lose hope? Part of the Migraine Ninja Oath is to "remain hopeful, steadfast, and determined." As individuals, it's difficult, if not impossible to do that alone. That's why we turn to each other when remaining hopeful gets difficult. 

Jeff Ray, a friend of mine, knows what it's like to lose someone close to you to that loss of hope that can lead someone to suicide. When his friend James, took his life, Jeff and some other friends wrote a song and recorded a music video dedicated to suicide prevention. I want to share that video with you, and I hope you'll share it with others. The message of the video is one that Migraine Ninjas share - THERE IS HOPE.

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com 
www.migrainedisease.com
www.healthcentralcom/migraine 

     


The Quintessential Migraine Ninja: Rosa Sundquist

MigraineNinja200Quite a few of you collaborated with me to put together our Migraine Ninja Oath, and it turned out very well.

Today, I want to introduce you to someone who is the quintessential Migraine Ninja, Rosa Sundquist. It makes me happy to be able to call Rosa my friend. She's a constant source of inspiration to me. She has had such a tremendous struggle with chronic, intractable Migraine, yet she's always hopeful. She never gives up.

I recently published a profile of Rosa on Remedy Health Media's HealthCentral Migraine site. It begins:

Rosa-Dolphin

Rosa Sundquist has had Migraines since she was a teenager. She endured the years 2008 to 2014 while in pain every single day. Still, she never gave up. With hope and determination, she worked with Migraine specialists to find treatments that would give her some relief.

Q: How long have you had Migraines? What’s your diagnosis, and how long did it take for you to get an accurate diagnosis?

Rosa Sundquist (RS): I’ve had Migraines since about the age of 15, perhaps longer. (I’m 55 years old now.) As a child, I had severe digestive issues. In fact, I don’t remember ever not having digestive issues.

I was officially diagnosed with episodic Migraine at the age of 27 and was told to take Motrin or Tylenol. I can’t remember who gave me the diagnosis. I think they were just guessing since my mom and sister also have Migraine disease. (I have family with Migraine on both sides, maternal and paternal.)

In September of 2008, I was diagnosed with chronic Migraine without auraintractable Migrainecervicogenic headaches, and occipital neuralgia. In 2009, hemicrania continua was added to the list of diagnoses, and in 2011, cervical dystonia joined the long list.

I hope you'll consider reading this profile, Rosa Sundquist: A Hopeful and Determined Migraine Patient. Reading more about Rosa is bound to raise your spirit and give you hope. 

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com 
www.migrainedisease.com
www.healthcentralcom/migraine