Migraine Advocacy

Migraine and Headache Awareness Blogging and Social Media Challenge

NMAHM2017-SMC-200June is just around the corner, and it's Migraine and Headache Awareness Month. Social media — blogging, Twitter, Facebook, etc. — is a great way to promote awareness. A unified message spread via social media can be extremely powerful. So we've put together daily prompts for an Awareness Month Social Media Challenge. The challenge isn't a contest to see how many days people will participate. It's simply a challenge to join us and participate as many days as you can and want to. We also hope you'll use the provided images to help unify the campaign.

Participation in the Blogging and Social Media Challenge doesn’t mean that you have to participate every day. If there are days when you’re not well enough or are too busy, that’s fine. Every bit of participation counts, helps, and is greatly appreciated.

There are several well recognized hashtags that can be used. We've already added the two primary tags to the prompts:

  • #MHAM: Migraine and Headache Awareness Month
  • #MHAMSMC: Migraine and Headache Awareness Month Social Media Challenge
  • #Migraine
  • #Headache
  • #ClusterHeadaches

We'll be blogging each day's prompt here, but it may be helpful for you to have all of the prompts in advance.

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day.
  1. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache management is as much an art as a science. http://poht.info/2qNtzdg #MHAM #MHAMSMC


    Bloggers:
    Please discuss elements that go into Migraine and Headache management in addition to medical knowledge.

  2. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache prevention is often a trial-and-error process. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Please share your experience with trying to find effective Migraine and/or Headache preventive treatments.

  3. Twitter & Facebook: Copy and paste:
    No #Migraine or #Headache treatment works for everyone. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    What has worked for you for Migraine and/or Headache prevention?

  4. Twitter & Facebook: Copy and paste:
    Having more than 1 disorder complicates #Migraine and #Headache Management. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Discuss the challenges you have experienced with #Migraine and other #Headache disorders.

  5. Twitter & Facebook: Copy and paste:
    Finding the right #Migraine and #Headache doctor can be a challenge. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Have you found a good doctor? Tell us about your journey to find the right doctor.

  6. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache treatment often requires more than one approach. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Share your experience with treatments other than neurology.

  7. Twitter & Facebook: Copy and paste:
    People with #Migraine and #Headache name their attacks. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    How does naming your attacks help you cope, or does it help?

  8. Twitter & Facebook: Copy and paste:
    Music can lift our mood when we feel down because of #Migraine and #Headache. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Blogger:
    What is your #Migraine and #Headache fight song? Tell us why you chose it.

  9. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache treatment can be complicated by other health conditions. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Describe a treatment dilemma you have experienced with #Migraine or #Headache and other comorbid health problems.

  10. Twitter & Facebook: Copy and paste:
    Pets can sometimes sense attacks and can comfort, helping with #Migraine and #Headache management. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    How does your pet help you manage #Migraine or #Headache?

  11. Twitter & Facebook: Copy and paste:
    Many talented artists have #Migraine or #Headache. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    How does #Migraine and #Headache impact your creative expression?

  12. Twitter & Facebook: Copy and paste:
    Many #Migraine and #Headache patients need a quiet place to recover. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    What's in your "#Migraine or #Headache cave?"

  13. Twitter & Facebook: Copy and paste:
    The Best #Migraine and #Headache Management treats the whole person, not just the body. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How do you incorporate the whole person in your Migraine and Headache Management – the physical, intellectual, and emotional?

  14. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache management includes never giving up. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please share what and/or who helps you never give up.

  15. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache Management needs a good toolbox. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What’s in your toolbox and why?

  16. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache education is needed to reduce stigma. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How has the stigma impacted you, and how have you fought it?

  17. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache create unique employment challenges. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How has Migraine or Headache impacted your career?

  18. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache affect the whole family. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How has Migraine or Headache affected your family?

  19. Twitter & Facebook: Copy and paste:
    Traveling with #Migraine and #Headache requires special accommodation. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What are your tips for successful travel with Migraine or Headache?

  20. Twitter & Facebook: Copy and paste:
    People with #Migraine and #Headache miss out on special occasions. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Tell us about a missed special occasion or strategy you've discovered to avoid missing out.

  21. Twitter & Facebook: Copy and paste:
    Many #Migraine and #Headache patients use creative strategies to avoid triggers. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What strategies do you use to avoid triggers?

  22. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache attacks impact the ability to focus and concentrate. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How do you cope with cognitive impairment? Share your best strategies.

  23. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache patients lose friendships because of symptoms. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Share your experience with friendships as a result of Migraine or Headache.

  24. Twitter & Facebook: Copy and paste:
    Support is an integral part of #Migraine and #Headache management. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please discuss your main source of support and any ways in which you support others.

  25. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache management means different things to different people. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What does Migraine and Headache management mean to you?

  26. Twitter & Facebook: Copy and paste:
    #Migraine and other #Headache disorders aren’t “just a headache.” http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What words other than “headache” do you think should be used instead of “headache,” and why?

  27. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache disorders are among the most disabling of all medical conditions. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: In what ways have Migraine or Headache disabled you, and how do you combat them?

  28. Twitter & Facebook: Copy and paste:
    Raising #Migraine & #Headache awareness leads 2 increased research for better treatments. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please discuss the need for research into new treatments.

  29. Twitter & Facebook: Copy and paste:
    People offer #Migraine and #Headache patients lots of advice, so helpful, some not. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please discuss how you handle well-meaning advice that isn’t applicable or helpful to you.

  30. Twitter & Facebook: Copy and paste:
    Many people with #Migraine and #Headache need access to better information. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How do you counter bad information that you find online and help others find correct information?

 

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate


Migraine Ninjas Stand Up and Speak Out

MigraineNinja200I've been thinking a lot about our Migraine Ninja Oath. These lines make me think of a principle that my father worked very hard to drum into me — standing up for myself. Consider these lines from the Migraine Ninja Oath:

I promise to do my best to…

resolutely advocate for myself and fellow Migraine Ninjas.

do whatever I can to reduce the stigma associated with Migraine.

always channel my inner ninja.

I will know…

each of us must stand for the stigma to fall away.

I am capable of standing for many Migraine Ninjas stand with me.

 As I've grown older and become a parent, then a grandparent, I've notices that many lessons our parents teach us come back to us, make sense, and mean more as we grow older. My Daddy and I had some truly great conversations when I was a child and after I was an adult and out on my own. He wanted me to find a loving life partner and marry, BUT he also wanted me to be able to stand on my own and take care of myself.

More than once, Daddy said, "If you won't get up and stand up for yourself, you can't expect someone else to do it for you." He carefully explained that I should never expect to sit back and expect other people to stand up for me if I wasn't willing to get off my butt and stand up for myself. He said that no matter how bad things got, there would always be at least some small way in which I could stand up and speak out for myself, even if it reached just one person at a time.

Having worked as a patient educator and advocate for people with Migraine and other Headache disorders for the last 17 years, this lesson has come to my mind very often. I have to admit to not understanding why so many people with Migraine won't stand up for themselves, let alone join in advocacy and awareness efforts that can help us all. More times than I can count, I've shared awareness and advocacy opportunities in which only an extremely small number of people participated.

From the periods in my life when my Migraines were chronic and nearly constant, I totally realize that many of us are limited in what we can do to support awareness and advocacy efforts. Some opportunities such as the annual Headache on the Hill event simply aren't physically possible for many. There are, however, opportunities that are far easier, so easy that anyone who can manage to be online can easily manage. There are Facebook posts that can be shared, Tweets than can be reTweeted, online petitions that can be signed in less than 30 seconds, and more.

So, please take another look at the parts of the Migraine Ninja Code that I shared above. If you're reading this, then you obviously read things online. A Migraine Ninja participates in awareness and advocacy opportunities as fully as we can. There may be some we can't manage, but there are plenty we can manage.

I'm proud of and thankful for my fellow Migraine Ninjas who stand up for themselves and for others who have Migraine disease. GO NINJAS!

Stand-Up-for-Self-Quote

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com
www.migrainedisease.com
www.healthcentralcom/migraine 

© Teri Robert, 2017.

 

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We Must All Move Against Migraine

MAMIf Migraine disease is a big enough part of your life for you to be reading this blog, it's impact on your life must be significant. You're most likely impacted by:

  • the lack of research funding, which results in a lack of effective treatments
  • the debilitating physical impact of the disease
  • the emotionally exhausting social stigma attached to the disease
  • and more

There are people out there working on all of these issues, but it's not enough - yet. Each of us — whether we have one mild Migraine attack a year, or a horribly severe Migraine attack every day — needs to do our part. We need to stand together and Move Against Migraine. The American Migraine Foundation (AMF) recently started an initiative to help us do just that, and it's called Move Against Migraine.

Here's a 60-second public service announcement that the AMF recently recorded:

To tell you more about Move Against Migraine, here's a video from Dr. David Dodick, Chair of the American Migraine Foundation:

 

Let me reassure you that nobody is asking you to do more than you can do. Most of you who are reading this probably have Facebook pages. Many of you have Twitter or other social media accounts. Sharing information about Move Against Migraine via social media is one easy way to participate.

Here's more information from the American Migraine Foundation:

I hope you'll take the time to peruse the materials from the American Migraine Foundation and join me in supporting and participating in their Move Against Migraine initiative. Truly, we must each adopt it as our own initiative if we want it to reach peak effectiveness.

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com
www.migrainedisease.com
www.healthcentralcom/migraine 

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