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May 2017

Migraine and Headache Awareness Blogging and Social Media Challenge

NMAHM2017-SMC-200June is just around the corner, and it's Migraine and Headache Awareness Month. Social media — blogging, Twitter, Facebook, etc. — is a great way to promote awareness. A unified message spread via social media can be extremely powerful. So we've put together daily prompts for an Awareness Month Social Media Challenge. The challenge isn't a contest to see how many days people will participate. It's simply a challenge to join us and participate as many days as you can and want to. We also hope you'll use the provided images to help unify the campaign.

Participation in the Blogging and Social Media Challenge doesn’t mean that you have to participate every day. If there are days when you’re not well enough or are too busy, that’s fine. Every bit of participation counts, helps, and is greatly appreciated.

There are several well recognized hashtags that can be used. We've already added the two primary tags to the prompts:

  • #MHAM: Migraine and Headache Awareness Month
  • #MHAMSMC: Migraine and Headache Awareness Month Social Media Challenge
  • #Migraine
  • #Headache
  • #ClusterHeadaches

We'll be blogging each day's prompt here, but it may be helpful for you to have all of the prompts in advance.

Here’s how it works:

  • Every day, the prompt for the day will be posted here.
  • To participate via Twitter or Facebook, just copy and paste the prompt, complete with the URL and hashtags. There will also be images provided each day. If you want to add an image on Facebook or Twitter, you’re welcome to use the images provided.
  • To participate by blogging, please write on the topic provided. Using one of the provided images would be appreciated.
  • If you blog on the day’s prompt, please return to that day’s post on Migraine Ninja, and comment with the link to your post. Please be sure to provide the link to the specific post, not your main blog URL. That way, we can Tweet and promote your blog entry for the day.
  1. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache management is as much an art as a science. http://poht.info/2qNtzdg #MHAM #MHAMSMC


    Bloggers:
    Please discuss elements that go into Migraine and Headache management in addition to medical knowledge.

  2. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache prevention is often a trial-and-error process. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Please share your experience with trying to find effective Migraine and/or Headache preventive treatments.

  3. Twitter & Facebook: Copy and paste:
    No #Migraine or #Headache treatment works for everyone. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    What has worked for you for Migraine and/or Headache prevention?

  4. Twitter & Facebook: Copy and paste:
    Having more than 1 disorder complicates #Migraine and #Headache Management. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Discuss the challenges you have experienced with #Migraine and other #Headache disorders.

  5. Twitter & Facebook: Copy and paste:
    Finding the right #Migraine and #Headache doctor can be a challenge. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Have you found a good doctor? Tell us about your journey to find the right doctor.

  6. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache treatment often requires more than one approach. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Share your experience with treatments other than neurology.

  7. Twitter & Facebook: Copy and paste:
    People with #Migraine and #Headache name their attacks. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    How does naming your attacks help you cope, or does it help?

  8. Twitter & Facebook: Copy and paste:
    Music can lift our mood when we feel down because of #Migraine and #Headache. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Blogger:
    What is your #Migraine and #Headache fight song? Tell us why you chose it.

  9. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache treatment can be complicated by other health conditions. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    Describe a treatment dilemma you have experienced with #Migraine or #Headache and other comorbid health problems.

  10. Twitter & Facebook: Copy and paste:
    Pets can sometimes sense attacks and can comfort, helping with #Migraine and #Headache management. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    How does your pet help you manage #Migraine or #Headache?

  11. Twitter & Facebook: Copy and paste:
    Many talented artists have #Migraine or #Headache. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    How does #Migraine and #Headache impact your creative expression?

  12. Twitter & Facebook: Copy and paste:
    Many #Migraine and #Headache patients need a quiet place to recover. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers:
    What's in your "#Migraine or #Headache cave?"

  13. Twitter & Facebook: Copy and paste:
    The Best #Migraine and #Headache Management treats the whole person, not just the body. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How do you incorporate the whole person in your Migraine and Headache Management – the physical, intellectual, and emotional?

  14. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache management includes never giving up. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please share what and/or who helps you never give up.

  15. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache Management needs a good toolbox. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What’s in your toolbox and why?

  16. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache education is needed to reduce stigma. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How has the stigma impacted you, and how have you fought it?

  17. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache create unique employment challenges. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How has Migraine or Headache impacted your career?

  18. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache affect the whole family. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How has Migraine or Headache affected your family?

  19. Twitter & Facebook: Copy and paste:
    Traveling with #Migraine and #Headache requires special accommodation. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What are your tips for successful travel with Migraine or Headache?

  20. Twitter & Facebook: Copy and paste:
    People with #Migraine and #Headache miss out on special occasions. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Tell us about a missed special occasion or strategy you've discovered to avoid missing out.

  21. Twitter & Facebook: Copy and paste:
    Many #Migraine and #Headache patients use creative strategies to avoid triggers. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What strategies do you use to avoid triggers?

  22. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache attacks impact the ability to focus and concentrate. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How do you cope with cognitive impairment? Share your best strategies.

  23. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache patients lose friendships because of symptoms. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Share your experience with friendships as a result of Migraine or Headache.

  24. Twitter & Facebook: Copy and paste:
    Support is an integral part of #Migraine and #Headache management. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please discuss your main source of support and any ways in which you support others.

  25. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache management means different things to different people. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What does Migraine and Headache management mean to you?

  26. Twitter & Facebook: Copy and paste:
    #Migraine and other #Headache disorders aren’t “just a headache.” http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: What words other than “headache” do you think should be used instead of “headache,” and why?

  27. Twitter & Facebook: Copy and paste:
    #Migraine and #Headache disorders are among the most disabling of all medical conditions. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: In what ways have Migraine or Headache disabled you, and how do you combat them?

  28. Twitter & Facebook: Copy and paste:
    Raising #Migraine & #Headache awareness leads 2 increased research for better treatments. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please discuss the need for research into new treatments.

  29. Twitter & Facebook: Copy and paste:
    People offer #Migraine and #Headache patients lots of advice, so helpful, some not. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: Please discuss how you handle well-meaning advice that isn’t applicable or helpful to you.

  30. Twitter & Facebook: Copy and paste:
    Many people with #Migraine and #Headache need access to better information. http://poht.info/2qNtzdg #MHAM #MHAMSMC

    Bloggers: How do you counter bad information that you find online and help others find correct information?

 

Namasté

Teri-Tammy1a

Teri Robert, patient educator and advocate
      Author of Living Well with Migraine Disease and Headaches
Tammy Rome, patient educator and advocate


Migraine Ninjas Stand Up and Speak Out

MigraineNinja200I've been thinking a lot about our Migraine Ninja Oath. These lines make me think of a principle that my father worked very hard to drum into me — standing up for myself. Consider these lines from the Migraine Ninja Oath:

I promise to do my best to…

resolutely advocate for myself and fellow Migraine Ninjas.

do whatever I can to reduce the stigma associated with Migraine.

always channel my inner ninja.

I will know…

each of us must stand for the stigma to fall away.

I am capable of standing for many Migraine Ninjas stand with me.

 As I've grown older and become a parent, then a grandparent, I've notices that many lessons our parents teach us come back to us, make sense, and mean more as we grow older. My Daddy and I had some truly great conversations when I was a child and after I was an adult and out on my own. He wanted me to find a loving life partner and marry, BUT he also wanted me to be able to stand on my own and take care of myself.

More than once, Daddy said, "If you won't get up and stand up for yourself, you can't expect someone else to do it for you." He carefully explained that I should never expect to sit back and expect other people to stand up for me if I wasn't willing to get off my butt and stand up for myself. He said that no matter how bad things got, there would always be at least some small way in which I could stand up and speak out for myself, even if it reached just one person at a time.

Having worked as a patient educator and advocate for people with Migraine and other Headache disorders for the last 17 years, this lesson has come to my mind very often. I have to admit to not understanding why so many people with Migraine won't stand up for themselves, let alone join in advocacy and awareness efforts that can help us all. More times than I can count, I've shared awareness and advocacy opportunities in which only an extremely small number of people participated.

From the periods in my life when my Migraines were chronic and nearly constant, I totally realize that many of us are limited in what we can do to support awareness and advocacy efforts. Some opportunities such as the annual Headache on the Hill event simply aren't physically possible for many. There are, however, opportunities that are far easier, so easy that anyone who can manage to be online can easily manage. There are Facebook posts that can be shared, Tweets than can be reTweeted, online petitions that can be signed in less than 30 seconds, and more.

So, please take another look at the parts of the Migraine Ninja Code that I shared above. If you're reading this, then you obviously read things online. A Migraine Ninja participates in awareness and advocacy opportunities as fully as we can. There may be some we can't manage, but there are plenty we can manage.

I'm proud of and thankful for my fellow Migraine Ninjas who stand up for themselves and for others who have Migraine disease. GO NINJAS!

Stand-Up-for-Self-Quote

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com
www.migrainedisease.com
www.healthcentralcom/migraine 

© Teri Robert, 2017.

 

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Migraine Ninjas: Adjusting Our Sails

MigraineNinja200Good afternoon to my extended Migraine Family!

The quote on the image below makes me think of living with Migraine disease. Of course, it was meant to be about life in general, but for many of us, Migraine has such a huge impact on our lives that it takes center stage.

There are so many things that are outside of our control. For example:

  • Genetics: We can't change the rules of genetics that left us susceptible to inheriting Migraine disease.
  • Many of our triggers: We can't control barometric pressure changes, hot summer temperatures, or many other things that are Migraine triggers for many of us.

Those are like the wind, and we can't change their direction.

That said, that doesn't mean there's nothing we can do.

My chosen destination is a life lived as well and fully as possible, despite Migraine disease, and I can adjust my sails to reach that destination. Here are some of the ways in which I draw on my inner Migraine Ninja and adjust my sails:

  • by working as a treatment partner with a good Migraine specialist
  • by doing my best to avoid some of my triggers: dehydration, irregular sleeping patterns, fragrances and odors, rooms that are too warm, closed spaces with loud noise
  • using my preventive treatment, as prescribed, every day without fail

AdjustSailsQuote

We're all different, so we have to adjust our sails differently.

What's your destination, and how do you draw on your inner Migraine Ninja and adjust your sails. Please leave a comment below, and share.

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com
www.migrainedisease.com
www.healthcentralcom/migraine 

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Migraine Ninjas Listen to Our Inner Voices

MigraineNinja200Does it ever seem that everyone we know has their own opinion about how we should live with Migraine... what we should take for our Migraines... what's causing our "headaches?"

People have varying motives for giving us their opinions. For the most part, they mean well. It's human nature to try to help when someone doesn't feel well. The problem is a lack of understanding of Migraine and the misconceptions that still flourish.

Too many people still think...

  • a Migraine is just a bad headache.
  • popping some Tylenol will make a Migraine go away.
  • we could control our Migraines if we "quit worrying about things."

There are times when Migraine has us so worn down that we may be tempted to listen to the opinions others offer, and it's possible that in those opinions, there are some valid suggestions. Here are some suggestions for evaluating the opinions and suggestions people offer us:

  • If it sounds too good to be true, it probably is.
  • At this point, there's no cure for Migraine disease, so there's no reason to even listen to a "cure" pitch.
  • Anyone who offers a treatment with huge success rates, and says there's a conspiracy to keep it away from patients because it would cut into the profits of the pharma companies is a whack job. There are many journalists with mainstream media outlets who would run with that story if it were true. Think about it. That's Pulitzer Prize territory.
  • Nothing has "no side effects." Everything has potential side effects and contraindications. Those "natural" products contain herbs and other substances that were our first "drugs," and they're still drugs.
  • When in doubt, we can always check with our doctors.

Whether people offer their opinions in terms of our lifestyle, our personality traits, or treatments they think we should try, we have to sort through all of it. In the end, as Steve Jobs said, we can't let the noise of other people's opinions down out our own inner voice. We're Migraine Ninjas, and this is when we must draw on our inner ninja to do what's right for us.

Ninja-Quotes-opinions-Jobs

Namasté,

_______________
Teri Robert
patient educator and advocate, author

author of Living Well with Migraine Disease and Headaches
www.terirobert.com
www.migrainedisease.com
www.healthcentralcom/migraine 

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